Saturday, June 19, 2010

eventful week

Well, the hospice team came and the hospice doctor managed to get hold of Dr Yee to discuss my case. Simultaneously, I found my "old lady" (aka the stoma) swelling to twice its usual size and rejuvenating to a young lady. That is to say, my stoma becomes bigger, and much smoother with no "wrinkles". Don't understand? Never mind.

The important thing is we might have found the cause of my fever: inflammation or infection of the intestines. After discussion, both doctors prescribed a course of antibiotics and would continue to monitor me.

Well, the fever stubbornly persisted till now. It would make me very sleepy. "Shuai Ge" is more worried about the persisting fever and what it might entail.

That's my update for you. Hope you have a great and enjoyable week-end!

Thursday, June 17, 2010

new relief but not quite

My appointment (last Friday) with the palliative doctor saw some changes. One is the change to morphine tablets. The other is to increase dosage for nerve pills. The good doctor hopes to bring some relief to my situation and return to marketing days.

On both Sat and Sun, I was drowsy and sleepy most of the time. I also had fever out of the blue. The fever hit a high of 39.7 degree celcius. It was controlled with paracetamol. The fever became a mild grade one till today! The hospice nurse was surprised about the fever. Oh, I had diarrhea too, which was why we were concerned about these twins. After discussing with the hospice nurse and getting hold of Dr Yee, I will be put on a course of antibiotics. Anyway, the hospice nurse is coming over later.


Yes, there is lesser pain, but there are other problems too. However, I am still thankful for being able to go marketing yesterday! ^_^

Friday, June 4, 2010

wait and weight

The helper went on a three-week paid home leave sometime in April. Last year, I asked her if she wanted to continue working in this household. She waited till end of the year, as in the last day of Dec, to tell me her decision. She asked for a longer leave, but I had my constraints. Not knowing how my condition would be, I agreed to give her three weeks off, instead of the usual two. Thankfully my condition stabilized, some sort.


The problem then became who to take care of me during her absence. My mum was the first person that came to mind. Joyce suggested a live-in nanny, somebody like a confinement nanny. I tried but couldn't get a nanny. When I approached my mum, fate had it that my aunt was also returning from New York City during the same three-week period. My mum had promised to accompany my aunt during her stay here and even resigned from her work at my aunt's suggestion. I wondered who was in greater need of my mum here. Despite offering to give twice of what my aunt was going to give, my mum insisted on keeping her promise to my aunt but agreed to come over on days when she was free. Okay... no choice. We both know how my aunt is like. I had offers from friends who would keep me company on days when my mum couldn't make it. Anyway, I wasn't stressed by this. Somehow I knew my mum would help. Then came the Iceland volcano eruption. Aunt's flight was canceled. Hahaha! Wasn't it divine intervention?

During the three weeks, I gained half a kilogram from mum's cooking and loving care. I simply love her mee-sua! Yummy! I was eating small light meal every three hours. Mum wouldn't take "no" for an answer. That's the difference between mother and helper. The helper cannot force me to eat if I refuse. It's a different story with mother. She will even spoon feed me!

On the week of the helper's return, I went to see my doctor. I was prescribed antibiotic for a suspected infection. Bad move. Like the previous antibiotic, I was puking big time on the third dose. I couldn't eat for almost three days. I lost all that I had gained during the three weeks, and probably more. Sad. During the next one week or so, mum made sure I was eating well again to put on whatever I had lost. Mum is the greatest!

I am now home bound. No more breakfast outing, marketing and grocery shopping, and even going to church. I don't have the energy level for simple outing like these. The pain sometimes comes unexpectedly and I don't want to be caught when outside. These days I spend less than two hours on the internet. I kinda enjoy being quiet and by myself. Peace.